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HIPAA Compliant, or HIPAA Covered?

One of the most common questions we receive is: what does HIPAA compliant mean? Well.. If a company or entity or health app is not covered by HIPAA, it may still say that it is “HIPAA compliant.” HIPAA...

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WPF urges HHS to clarify the harms of medical identity theft for victims

WPF has urged HHS to clarify the intersection between HIPAA compliance and harms resulting from medical identity theft in its response to the Request for Information from the Office of Civil Rights of...

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HIPAA and Reproductive Health: A companion FAQ to the Patient’s Guide to HIPAA

July 2022 Download a PDF The World Privacy Forum publishes and maintains A Patient’s Guide to HIPAA, which is a plain language explanation of how to use the law to guard your health privacy. This...

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How New Procedural Controls Using the Privacy Act of 1974 Can Improve the...

September 2022 By Robert Gellman and Pam Dixon Download this Report Executive Summary This report suggests specific procedural and substantive ways that the Executive Branch can revise implementation...

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FTC takes first enforcement action under its Health Breach Notification Rule;...

The FTC announced its first enforcement action under its Health Breach Notification Rule. This rule applies to entities that are not covered under HIPAA. The announcement of the proposed order was...

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Emerging Technologies, Human Subject Research, and the Common Rule: High...

Kate Kaye, Deputy Director  12 April, 2023  Download PDF version  Earlier this month, the World Privacy Forum (WPF) attended the OHRP Research Community Forum in Knoxville, TN. This was a joint...

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WPF advises HHS regarding proposed changes to standards for privacy under HIPAA

WPF provided detailed comments to the US Department of Health and Human Services regarding its proposal for changes to HIPAA regarding modifications to the Privacy Rule. Specifically, HHS proposed...

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Statement of Pam Dixon at the FTC Commission Meeting re: WPF request that the...

This statement was delivered orally to the FTC in its Open Commission Meeting, held on 18 January 2024.   Download the statement (PDF)  ———————— Statement of Pam Dixon, Executive Director, World...

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WPF comments to NIST regarding its differential privacy guidance

WPF submitted comments to the National Institute of Standards and Technology regarding its Draft Guidelines for Evaluating Differential Privacy Guarantees. The comments approach the NIST Draft Guidance...

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WPF advises FDA and HHS on informed consent guidance for medical research

Download Comments (PDF) April 2024 The World Privacy Forum filed detailed comments regarding draft guidance on privacy and medical research to the U.S. Department of Health and Human Services and the...

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